Events Calendar & Registration
We facilitate events to further our collective goal of improving the quality of life of our patient community.
Clinician’s Roundtables
Clinician’s Roundtables are for clinicians who want to expand and share their expertise in care for patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) , Long COVID and other complex chronic conditions.
Open to all, preference given to Clinician’s questions.
Research Roundtables
Research Roundtables are to discuss scientific ideas related to our project. These vary from specific topic presentations with discussion or to open format, drop in with what is interesting to you right now related to our project.
Everyone is welcome to join us.
Educational Seminars
Educational Seminars are generally more targeted towards our patient community but cover topics that clinicians and researchers may find of interest. Clinicians and researchers are welcome to attend and apply to speak.
As always, attendance is open to all!
Research Roundtable
We will continue the conversation about the brainstem and the mechanical basis model of ME/CFS started at the roundtable in October.
This second meeting will include:
- Thomas Varley, PhD: Recap of Part 1
- Kiran Thapaliya, PhD: Imaging the Invisible: Multi-Modal MRI Reveals Brainstem Abnormalities in ME/CFS
- Herbert Renz-Polster, MD: An ME/CFS hypothesis with brainstem connections- Discussion of connections with other ME/CFS research
RR Community Meeting
Join us for an update on the preliminary results data analysis for the Remission Biome project.
Our data analysis team have shared some patterns of symptom clustering and interesting trends and responses.
Come discover how the three groups that participated in the protocol compare to one another.
Questions welcomed — send us your questions in advance by email (here) or join us live!
Past Events
We facilitate events to further our collective goal of improving the quality of life of our patient community. The best way to find out about upcoming events and make sure you see replays of events you miss is to join our newsletter.
Join us in this webinar as we walk you through all of the new breakthroughs, achievements, changes and lessons learned along the past few months.
We'll discuss next steps and where we're headed with Renegade Research.
The Mechanical Basis Model:Brain Stem Deformation — a key to understanding ME/CFS?
In this Research Roundtable Jeff Wood, Michael VanElzakker and Dr. Brayden P Yellman will discuss The Mechanical Basis Model, specifically the Brain Stem Deformation and its potential to understanding ME/CFS.
In this Clinician's Roundtable we explore with Dr. Rebecca Ryan the disorders of the gut-brain axis in MECFS and Long COVID.
Dr. Rebecca Ryan is an Australian trained Gastroenterologist and Hepatologist known for her expertise in complex medical conditions and her focus on the Gut-Brain connection. You can find more info in her website here.
In the third of this three part series, — Dr. Afrin’s “MCAS 102-B”, — Dr. Afrin will focus on the extensive details of treatment approaches.
Dr. Afrin is a noted Hematologist specialist and a pioneer in the area of mast cell disease research.
To learn more about Dr. Afrin, please visit the link.
In the second of this three part series, — Dr. Afrin’s “MCAS 102-A”, — Dr. Afrin will focus on the details and complexities of diagnosing MCAS.
Dr. Afrin is a noted Hematologist specialist and a pioneer in the area of mast cell disease research. To learn more about Dr. Afrin, please visit the link.
In the first of this three part series, Dr. Afrin’s “MCAS 101” is an introduction to the subject which explains the basics of what the disease is and how it operates at biological and clinical levels. This session will provide an introduction to diagnosis and treatment.
Dr. Afrin is a noted Hematologist specialist and a pioneer in the area of mast cell disease research. To learn more about Dr. Afrin, please visit his website here.
On this Research Roundtable we'll discuss T-cell dysfunction in ME/CFS and Long COVID with researchers Liisa K. Selin, MD PhD; Anna Gil, PhD, viral immunologists from the University of Massachusetts Chan Medical School; Roshan Kumar, PhD, Executive Director, External Innovation, HiFiBiO Therapeutics; Rivka Solomon & Megan Fitzgerald, patient reps at PLRC. To find more, please visit this link and this link. You can find the paper here.
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Join us for the Renegade Research/Remission Biome Clinician's Roundtable with guest speaker Dr. John Haughton, MD.
Dr. Haughton is a skilled clinician and expert in translating emerging research into clinical practice.
Our May 3rd Roundtable will feature Dr. Todd Davenport: "Eating the Elephant One Bite at a Time: Post-Exertional Neuroimmune Exhaustion as a Bioenergetic Condition".
Clinicians will be able to earn 1 CME credit.
Join us for the Renegade Research/Remission Biome Clinician's Roundtable "follow-on session" with guest speakers Dr. David Kaufman and Dr. Ilene Ruhoy from The Center for Complex Diseases.
Our March 15 webinar was so popular, they're returning on May 1, 2024 to answer more questions.
Dr. Vicenç Gilete, a Neurosurgeon from Barcelona, Spain, and Amy Hyde Smith will discuss topics such as CCI/AAI, Chiari, Tethered Cord and Scoliosis within infection associated chronic illnesses.
Join us for the first Renegade Research/Remission Biome Clinician's Roundtable with our guest speakers Dr. David Kaufman & Dr. Ilene Ruhoy from The Center for Complex Diseases.
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Do want to become a speaker?
We'd love to have you! Learn more about it here.