Our Team is Patient-Led
Remission Biome is led by a team of patients. We feel it empowers us to uniquely navigate and creatively remove barriers to getting solutions to our global patient community. It is our greatest asset in our organization by far.
The participants of the Renegade 50, the first large group to test the protocol, are all contributing to the foundation of this project through being our beta testers. Many have become contributing team members by volunteering their time and expertise to build out our organization and collective self-experiment.
It is a founding principle to build our team and continue to grow by utilizing the talent and insight that only people with first hand experience with chronic illnesses can bring to our project.
We are proud to share the phenomenal talent, expertise, passion, and personal stories of many of our team members who have agreed to be public. We have team members who have chosen to share in ways that protect their privacy and others who choose to stay private for now. We have a strict honor code and privacy is a top community priority. That applies to how we manage data as well.
relentless drive
We believe that innovation in solving MECFS, Long Covid and other infection associated chronic illnesses will come by tapping into the wisdom of lived experience mixed with relentless drive to solve our own disabling illnesses.
In Our Organization:
- Patients are the experts.
- We are creating an organization that allows room for our conditions to be a strength, not a weakness.
- An environment where the natural fluctuations of the conditions are not an impediment.
- An environment where it's not dogmatic or hierarchical, where the opinion of one person is not valued above all others.
Founder
Name Surname
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Our Remission Biome Team
Introducing Nick Melia, our Lead Researcher with a dual residency in Oliva, Spain, and Wales, UK. With a background in medical biochemistry and a firsthand experience as a long COVID patient, Nick's journey into patient-centered research was catalyzed by personal and familial encounters with chronic illness. Witnessing his mother's battle with fibromyalgia and experiencing his own onset of long COVID in 2020 ignited a fervent dedication to unraveling the complexities of chronic diseases.
Since 2015, Nick has been delving into the intricate web of chronic illness, focusing his research efforts on understanding disease processes in ME/Long COVID and exploring the variability of patient responses to interventions. His personal interests span a broad spectrum, from investigating polymicrobial dysbiosis and pro-resolving responses to inflammation to delving into the phenotyping of chronic diseases. Nick's collaboration with Remission Biome stems from a belief in the power of multidisciplinary teams to challenge outdated methodologies and uncover new hypotheses, empowering patients to understand and navigate their conditions more effectively.
Beyond the realm of research, Nick finds solace in the pursuit of knowledge, immersing himself in eclectic reads ranging from ecology to philosophy, sociology, and beyond. His curiosity extends to experimenting with food and drink, a passion that led him to work in a molecular gastronomy bar prior to his illness. A connoisseur of electronic music, Nick's diverse interests fuel his drive to decipher the intricacies of scientific concepts while embracing the joys of life outside the laboratory.
Introducing Andrew Boland, a resilient Software Engineer and Website Developer from the vibrant city of Dublin, Ireland. Andrew's journey into the realm of citizen science and patient advocacy was catalyzed by his own battle with chronic illness, specifically Long COVID, which struck him in May 2022, abruptly halting his professional pursuits. Armed with a background in theoretical physics and mechanical engineering, Andrew's transition into the role of a patient researcher was fueled by a frustrating lack of understanding and support from medical professionals, who often dismissed his debilitating symptoms as psychological or irrelevant.
Driven by a thirst for understanding and a desire to chart a new path amidst the isolating experience of chronic illness, Andrew delved deep into scientific literature, seeking to unravel the complexities of his condition. However, the sheer volume of information proved overwhelming, prompting him to seek out like-minded individuals on platforms like Twitter. It was through this journey that Andrew connected with Tess and RemissionBiome, finding solace and purpose in their shared mission to decode the mysteries of chronic illness and repurpose existing treatments for revolutionary relief.
Andrew's passion for unraveling the mysteries of chronic illness is matched only by his enthusiasm for forest baths, a practice that brings him solace amidst the chaos of his health struggles. He finds joy in learning and teaching new concepts, as well as engaging in discussions and debates about big ideas, reflecting his insatiable curiosity and commitment to making a meaningful impact in the world, both within and beyond the realm of chronic illness research advocacy.
Meet Richelle Sepulveda, our Group Lead hailing from the tranquil landscapes of the Inland Northwest in the US. With a professional background in psychology education at the local community college, Richelle's journey into citizen science and patient advocacy was sparked by personal experience. Faced with navigating her child's language delays and subsequent diagnosis, Richelle's role as a caregiver and researcher ignited a passion for empowering others in similar situations.
Since March 2020, Richelle has been confronting the challenges of chronic illness, particularly Long COVID, which led her to delve deeper into understanding her condition and advocating for herself within the healthcare system. Her personal research interests span a diverse range, from exploring the intricacies of GIP & Postprandial Tachycardia to unraveling the complex interplay between hormones and health/behavior, as well as investigating learning disorders.
Joining forces with Remission Biome, Richelle brings her wealth of personal experience and professional knowledge to the forefront. Her own journey of crafting a treatment plan based on insights from the Chronic Illness Community motivates her to bridge the gap between available resources and those in need. Beyond her work with RB, Richelle finds solace in spending quality time with her husband, cherishing moments with her beloved pets, and indulging in the world of literature. As she continues her quest for health and balance, Richelle holds onto the hope of reclaiming her passions for hiking and gardening, eagerly awaiting brighter days ahead.
Meet Joshua Chanin, an invaluable member of the data analysis team at Remission Biome, calling the sunny shores of San Diego, California home. With a professional background as an Associate Professor of Public Affairs at San Diego State, Joshua's journey into the realm of citizen science and patient advocacy was sparked by a personal battle with chronic illness. Since his second COVID infection in June 2022, Joshua has been on a quest to heal his body and uncover the mysteries of Long COVID.
Driven by a desire for answers and a lack of support from traditional healthcare avenues, Joshua found solace and solidarity within the community at Remission Biome. Fueled by a DIY ethos and a shared sense of empowerment, Joshua's involvement with the team represents not just a path to personal improvement, but a beacon of hope for countless others navigating similar journeys. From unraveling the complexities of information, risk perception, and health decision-making to examining the operation of publicly funded research models, Joshua's research interests underscore his commitment to driving meaningful change.
When Joshua isn't wrangling his illness or diving into data analysis with Remission Biome, you'll likely find him indulging in the simple pleasures of life. Whether he's spinning Modest Mouse records, cheering on the San Diego Wave, or sharing laughs with his kids over his (hilarious) jokes, Joshua finds joy and inspiration in the moments that matter most. As he continues his quest for healing and understanding, Joshua stands as a testament to the resilience of the human spirit and the transformative power of community-driven research.
Meet Sam Keating, a true embodiment of resilience and determination, wearing multiple hats as a Citizen Scientist, Systems Biologist, and Patient-turned-Researcher. Based in Silver Spring, Maryland, USA, Sam's journey into the world of patient advocacy and research was shaped by a lifetime of battling chronic illness. From a sudden onset of POTS in 2016 to navigating multiple comorbidities, including epileptic dysgenesis that led to a right temporal lobectomy surgery at age 17, Sam's journey has been marked by challenges and triumphs alike. But rather than letting adversity define them, Sam has embraced a philosophy of seizing control over their own destiny, channeling their experiences into a relentless pursuit of knowledge and innovation.
With a professional background spanning Chemical Engineering, Bioinformatics, and Systems and Synthetic Biology, Sam's expertise shines through in their role as a Data Analysis contributor and planning member at Remission Biome. Drawing inspiration from their own lived experiences and fueled by an unwavering ambition to develop new treatment options, Sam is at the forefront of ME/CFS and Long Covid bioinformatics research, employing cutting-edge techniques like single cell RNA sequencing (scRNAseq) and scSLAMseq to unravel the mysteries of these complex conditions.
With each step forward, Sam is not just shaping the future of research but inspiring others to redefine what's possible in the face of adversity. Motivated by their most ambitious career goal, Sam is determined to develop new treatment options for at least one condition they have firsthand experience living with.
Ruhi Snyder is an interdisciplinary researcher, educator, and advocate. She has been in the the field of sleep medicine and health care for over two decades. She is a board registered polysomnographer and board registered in Advanced Clinical Sleep Health. Her decade long groundbreaking study “The Role of Self-Regulation to Counter the Slow Violence of Shift Work”, investigated the role of self-regulation, exercise, diet and shift schedules to mitigate the negative impact of skewed circadian rhythms.
She is the founder of ruhisleep and Naptor- not for profit organization dedicated to advocacy and public education on the science, nature, and importance of sleep - through the lens of biomedical sciences, the humanities, the economics and human rights. She is also the host and the creator of Sleep and Society Podcast, which features discussions that focus on humanity and society through the lens of sleep and wellbeing.
As a caregiver, her current focus is on the care and the treatment of humans with severe to very severe MECFS. Born in Punjab, India, she lives with her family in Kingston (Katarokwi), Ontario, Canada, situated on the traditional territories of the Haudenosaunee and the Anishinaabe Peoples of the First Nations.
Meet Patricia, a dedicated accounting professional with a heart for advocacy and a commitment to improving the lives of those battling chronic illness. Based in Connecticut, US, Patricia's journey into the world of patient advocacy was shaped by her own battles with ME/CFS since 2009 and Long COVID since 2023. With a background as a CPA and experience in both Big 4 Accounting firms and private accounting, Patricia brings a wealth of expertise to her role at Remission Biome, where she focuses on budgeting and accounting systems.
Driven by a desire for improved quality of life and a lack of medical options for ME/CFS patients, Patricia's journey into patient advocacy is rooted in a quest for solutions and support. With a keen interest in researching potential structural issues due to collagen breakdown, viral persistence in organs, and inflammatory responses, Patricia is determined to uncover new insights and potential treatments. Her decision to work with Remission Biome stems from the community's well-informed, compassionate nature and their dedication to sharing knowledge and resources.
When Patricia isn't wrangling numbers or delving into research with Remission Biome, you'll likely find her soaking up the sun at the beach, cherishing moments with her family and beloved dog, or indulging in her passion for cooking. With a heart full of compassion and a mind dedicated to making a difference, Patricia stands as a beacon of hope for patients everywhere, proving that even in the face of adversity, there is strength in community and power in knowledge.
Meet Tara Foti, a beacon of hope and a force for change within the corridors of Remission Biome, nestled in the vibrant city of Tampa, FL, USA. Armed with a background in public health research, Tara's journey into the realms of citizen science and patient advocacy was catalyzed by a profound need for transformation. Since December 2021, Tara has confronted chronic illness head-on, fueling their passion to challenge the entrenched norms of health research and patient care.
With a keen focus on amplifying patient voices, Tara's role as a research volunteer at Remission Biome is imbued with purpose and dedication. From crafting insightful survey designs to unraveling the narratives of patient stories, Tara's expertise in healthcare services and patient perspectives serves as a cornerstone of their work. Driven by an unwavering commitment to understanding the complexities of ME/CFS and Long COVID, Tara's efforts transcend the boundaries of traditional research methodologies.
Driven by a fervent belief in the transformative power of patient-led research, Tara champions a new paradigm for post-infectious conditions. Their research interests, spanning healthcare access and quality, evidence-based practices, and innovative solutions to systemic challenges, underscore their unwavering dedication to driving meaningful change. Beyond the realm of research, Tara finds solace and inspiration in the simple pleasures of life, cherishing moments of joy with loved ones and nurturing their passions for baking, exploration, and self-discovery. As they stand shoulder to shoulder with the community at Remission Biome, Tara's presence serves as a beacon of hope, guiding the way towards a future where patients' voices are heard, valued, and empowered.
Isabel Ramirez-Burnett is at the intersection of science, advocacy, and innovation. She is the CEO of Renegade Research and the Project Director of the groundbreaking Remission Biome project. When the challenges of ME/CFS rerouted her medicine career trajectory, she trained as a Systems Engineer. Her love of science brought her to the pharmaceutical industry. She later became a board-certified health coach. She found her calling as a patient-led researcher and advocate.
Driven by her own struggles, Isabel embraces citizen science. She uses her deep understanding of systems and her love for science to unravel the complexities of chronic illness. Her journey has evolved into a mission, fueling her work to redefine research paradigms and improve patient outcomes.
Isabel's passion lies in exploring the microbiome's role in health, dissecting the neuro-cognitive implications of chronic illness, and unraveling the intricate web of immune, metabolic, and inflammatory pathways. She believes in empowering patients to be catalysts for change, to reclaim agency over their health narratives. She has an unwavering commitment to reshaping the future of healthcare. As she continues to lead the charge, she embodies the spirit of empowerment, turning adversity into opportunity, and offering hope to countless others on similar journeys.
Meet Merve Tepe, PhD, a dedicated member of the Social Media Team at Remission Biome, currently based in Turkey with plans to relocate to the US. With a background in microbiology and a specialization in bacterial biomineralization and industrial applications, Merve's journey into the realm of patient advocacy was sparked by an eye-opening encounter with Remission Biome. Although Merve doesn't personally suffer from chronic illness, their experience volunteering for aid societies exposed them to the struggles of individuals with ME/CFS and Long COVID, igniting a passion for patient advocacy and community-driven science.
Driven by a desire to make a difference, Merve's research interests now center around advanced gut and microbiome research related to ME/CFS, Long COVID, and Lyme disease. With a focus on understanding the role of biofilms and uncovering the root causes of these complex illnesses, Merve is committed to shedding light on the challenges faced by patients and driving forward innovative solutions. As a member of the team at Remission Biome, Merve channels their expertise into fundraising, science communication, and ensuring video accessibility, all in service of amplifying patient voices and accelerating progress in the field.
When Merve isn't immersed in the world of patient advocacy or delving into scientific research, you'll likely find them indulging in their passions outside of work. From cooking and baking culinary delights to spending time in nature, traveling, and volunteering for aid societies, Merve finds joy and fulfillment in making a positive impact both in and out of the laboratory. With unwavering dedication and a heart full of compassion, Merve stands as a beacon of hope for patients everywhere, proving that even those without personal illness can be powerful allies in the fight for a brighter, healthier future.
Melissa Red Hoffman, MD, ND, FACS initially trained and worked as a naturopathic physician and a yoga teacher. She then attended medical school at Oregon Health and Science University in Portland, Oregon, completed a residency in general surgery at Valleywise Health Medical Center (formerly Maricopa Medical Center) in Phoenix, Arizona, a fellowship in Surgical Critical Care at University of North Carolina in Chapel Hill and a second fellowship in Hospice and Palliative Medicine through Mountain Area Health and Education Center.
She now works as an acute care surgeon (a mix of trauma, surgical critical care, and emergency general surgery) and serves as an Associate Medical Director of both Hospice and Palliative Medicine, all in Asheville, North Carolina. Red is the co-founder of the Surgical Palliative Care Society and the host of The Surgical Soul podcast, exploring the secret lives of surgeons both inside and outside the operating room.
As the survivor of multiple violent losses and as a physician with chronic illness, Red utilizes her diverse personal and professional experiences to deliver whole-person care to patients and their families, often during some of the most challenging days of their lives. She spends her free time resting, soaking in the bathtub, creating, and hanging out with her favorite person (boyfriend, Charles) and her favorite animal (orange cat, Sammy).
Meet Kat Boniface, ABD, our Group Lead orchestrating from the realms of animal science and the history of science & technology. Kat's journey into the realm of citizen science and patient advocacy began long before her own health battles. From undergraduate days at Stony Brook, where she immersed herself in student-led experiments, to her involvement with the local Agricultural Extension while managing an equestrian program in Maryland, Kat has always been drawn to the intersection of research and community engagement. However, it was a personal health crisis in the spring of 2021 that propelled Kat into the forefront of patient-centered research. Battling years of medical uncertainty and experiencing a terrifying moment of paralysis, Kat delved headfirst into medical literature, applying her knowledge of animal science to decipher the complexities of her own condition.
Since 2008, Kat has navigated the challenges of chronic illness, weaving her experiences and expertise into a journey of discovery. Fascinated by the intricate workings of glutamate and the shared metabolic and immune processes between ME/LC and acute laminitis in horses, Kat serves as a genetics translator, bridging gaps between disciplines. Her collaboration with Remission Biome signifies a convergence of personal experimentation and collective learning, as she channels her passion for understanding mechanisms into actionable solutions for all.
Beyond her role as a patient researcher and advocate, Kat is a founder of the Equine History Collective and a devoted horse trainer. In the moments between wrangling her illness and diving into research with RB, she finds solace in the timeless connection between humans and horses, a bond that transcends the boundaries of time and space.
Miguel Casali is a doctor with a humanistic approach. He is driven by curiosity, learning from different cultures, he has been driven to reject hierarchical structures that place the physician as the ultimate authority. Miguel sees his patients as human beings at the center of their stories, seeing them as human beings first.
Miguel likes to take time with his patients, both to treat and prevent further health issues. He believes in removing barriers to care, so that patients can seek the care they need anywhere. This is why his vision expands globally, where he networks with other teams providing accessible models anywhere in the world. This vision connected him to Remission Biome where he immediately became invested in helping our mission.
Miguel has successfully transitioned from a traditional health care model, where he practiced for many years in Spain, to now practicing independently in both Spain and Ireland, with plans to expand to other European countries as well as India. His vision centers around ancestral health principles and evolutionary medicine, merging the ancestral and the modern to provide his patients with the best sustainable possible treatments and strategies for the best possible outcome.
In his free time, Miguel enjoys time with Family and friends in nature hiking and fishing. He also loves the arts, including art therapy. He enjoys painting, singing, and dancing.
Meet Tess Falor, PhD, our visionary founder based in the colorful city of Denver, Colorado. Armed with an undergraduate degree in Aerospace Engineering and a PhD in Earth and Planetary Science, Tess's journey from NASA's Jet Propulsion Laboratory to the forefront of medical research is nothing short of inspiring. Her relentless pursuit of understanding, coupled with her personal battle with chronic illness since 2005, has fueled her passion for patient advocacy and citizen science.
Fascinated by systems biology, neuroinflammation, and evolutionary medicine, Tess combines her diverse background in systems engineering and scientific research with her personal experience to drive meaningful change. Her journey from a patient seeking answers to a leader empowering millions embodies the spirit of resilience and innovation.
When not wrangling her illness or spearheading groundbreaking research at Remission Biome, Tess enjoys spending time with her young son, indulging in her love for cooking, and unleashing her creativity through mixed media art. Her dedication to improving the lives of those affected by chronic illness is reflected not only in her work but also in her unwavering commitment to making a difference in the world.
Meet Jess Wallach, a passionate advocate for change and a vital member of the Renegade Research Structure Team at Remission Biome, situated in the vibrant city of Seattle, WA, USA, on the ancestral lands of the Duwamish and Coast Salish peoples. From educator to community organizer, Jess's journey into the realm of citizen science and patient advocacy was ignited by a profound shift in their health in 2022. Faced with debilitating symptoms and a lack of answers from traditional medicine, Jess embarked on a journey of self-discovery and empowerment, fueled by a thirst for knowledge and a desire to help others facing similar struggles.
With a background rooted in grassroots activism and community campaigns for climate justice, Jess brings a unique perspective to their role at Remission Biome. As part of the Renegade Research Structure Team, Jess is dedicated to redefining traditional research structures and championing patient-led, patient-centered approaches to understanding chronic illness. Their commitment to empowering individuals through knowledge sharing and community support is a driving force behind their work with Remission Biome.
When Jess isn't wrangling their illness or delving into research with Remission Biome, you'll likely find them immersed in the joys of everyday life. From tending to their garden, where food and plant medicine play a central role, to devouring the pages of their latest read, Jess finds solace and inspiration in the simple pleasures of existence. And on a good day, you might even catch them cruising around the neighborhood on their new e-bike, soaking in the beauty of the world around them. As they continue their journey of healing and discovery, Jess stands as a beacon of hope and resilience, proving that even in the face of adversity, there is strength in community and power in knowledge.
Introducing Maya L, a dedicated Project Team Member and champion for patient-driven research, hailing from a background rich in nursing, health equity, and scientific exploration. Maya's journey into the realm of citizen science and patient advocacy was spurred by her own battle with chronic illness, which began with migraines in childhood and culminated in a debilitating bout of Long COVID in March 2020, accompanied by ME, MCAS, and exacerbated POTS, confining her to mostly bedridden life for the past three years.
With a professional history as a School Nurse and a focus on health equity as a RWJF Clinical Scholars Fellow, Maya's transition into the role of a patient researcher was driven by a lack of treatment options and institutional research interest in her condition. Recognizing the untapped potential of patients as citizen scientists, Maya believes in harnessing the collective wisdom and expertise of the chronically ill community to push scientific understanding forward. Her personal research interests, ranging from Post Exertional Malaise to Cognitive impairment and Orthostatic Intolerance, reflect her commitment to unraveling the complexities of her condition and advocating for better treatment options.
Collaborating with Remission Biome, Maya finds solace and purpose in a collective effort to self-study chronic illness. Despite her limitations, Maya is grateful for the opportunity to contribute to research as she is able. Beyond her role in patient advocacy, Maya finds joy in simple pleasures like knitting during elusive good periods, and remains passionately dedicated to health education and accessibility, even amidst the challenges of her illness.
Meet Kimberly Kerr, a dedicated advocate for change and virtual collaboration expert based in Canada. With a diverse background in business, marketing, psychology, and women's studies, Kimberly's journey into the world of patient advocacy was spurred by her own battle with chronic illness. Struggling with chronic kidney disease (CKD), immunoglobulin deficiency (IgG), and Long COVID, Kimberly's journey of self-discovery and empowerment began in earnest in early 2023 when she was diagnosed with end-stage kidney disease (ESKD).
Armed with a passion for self-directed healthcare and a thirst for knowledge, Kimberly became a staunch advocate for herself and others facing similar challenges. Frustrated by the lack of information and resources within the traditional healthcare system, Kimberly turned to alternative health options and the wisdom of fellow chronic illness warriors for guidance. Now, as a member of the Team at Remission Biome, Kimberly lends her expertise to social media management, public relations, fundraising, and sponsor coordination, all while championing the mission to empower the chronically ill with knowledge and support.
When she's not busy supporting Remission Biome, Kimberly finds solace and joy in the company of her granddaughter, grandpuppies, and three adult children. In her spare time, she enjoys immersing herself in literature, music, and online chess, grateful for the technology that allows her to connect with the world despite the physical limitations imposed by her chronic illnesses. With unwavering determination and a heart full of compassion, Kimberly stands as a beacon of hope for individuals navigating the complex landscape of chronic illness, proving that even in the face of adversity, there is strength in community and power in knowledge.
Michael has a background in zoology and psychology, with a special interest in nature connectedness. They are an active member of the Long Covid community and involved in various projects, such as Long Covid Support, Renegade Research, Remission Biome, CrunchME, Long Covid Toolkit, and he is one of the LC-PLAN advocacy graduates. They are also involved in PPIE (Patient and Public Involvement and Engagement) for Long Covid research studies, e.g., LOCOME (via Action For ME). When they recover, you’ll find them underwater.
Meet Sam Nolen, PhD, the data maestro of Remission Biome, hailing from the vibrant cityscape of San Francisco, CA. With a Stanford math PhD tucked under their belt and a resume boasting stints at Airbnb and Google, Sam's journey into the realm of data science is nothing short of extraordinary.
But what sets Sam apart isn't just their knack for numbers—it's their resilience in the face of adversity. Since 2022, Sam has been battling chronic illness, turning the tables on their own health journey. When conventional medicine fell short, Sam took matters into their own hands, diving headfirst into the world of patient-led research. It's this journey of necessity that led Sam to the doorstep of Remission Biome, where they now lend their expertise to decode the mysteries of ME/CFS.
With a mind as sharp as their favorite chess moves, Sam's research interests revolve around unraveling the intricate subtypes within ME/CFS. Their pursuit of understanding the nuances of this complex condition is driven by a passion for progress and a determination to make a difference. When Sam isn't crunching numbers or delving into the depths of ME/CFS research, you'll likely find them locked in a strategic battle on the chessboard or buried nose-deep in ancient history texts. And let's not forget their feline companion, Lentil, who keeps things lively with playful antics and purr-fect companionship.
Introducing Elly Brosius, MS, our Volunteer Protocol Group Lead and Support Group Host, hailing from the landscapes of Northern VA and Eastern NC. With a profound journey spanning back to age 11, Elly has navigated the challenges of chronic illness, officially recognized as ME/CFS with Orthostatic Intolerance and neck instability since 1992, with the recent addition of Long COVID in 2020. Armed with a background in physics and acoustics, Elly's transition into the realms of citizen science, patient research, and advocacy was driven by a deep-seated need to find solutions, not just for herself but for the broader community grappling with similar afflictions.
From her involvement in government trials to her steadfast advocacy spanning over three decades, Elly's journey is marked by a relentless pursuit of knowledge and solutions. With a keen interest in tailoring supplementation, understanding immune system activation of coagulation, and exploring the nuances of probiotic strains, Elly's research endeavors are fueled by a desire to unravel the complexities of chronic illness and improve the quality of life for herself and others.
Collaborating with Remission Biome, Elly finds solace and empowerment within a community that values every individual, irrespective of their level of illness. As she delves into seminar organizing and Remission Biome data compliance and analysis, Elly finds joy in her medicinal gratitude group, indulges in creative sewing projects, and unwinds with cooking reality TV, finding solace and inspiration in simple pleasures amidst the complexities of chronic illness and research advocacy.
Introducing Shelley Hayden, our dynamic Group Lead/Content Manager and Renegade Research Board Secretary hailing from the vibrant SF Bay Area, California. With a background in Textile Science from UC Davis and two decades in the international fashion industry, Shelley's journey to the forefront of patient advocacy and citizen science is as diverse as it is inspiring.
Since 1996, Shelley has navigated the complexities of ME/CFS and, more recently, Long COVID, transforming her personal challenges into a catalyst for change. Her determination to understand her conditions led her down the path of citizen science, where she discovered a passion for empowering others to take control of their health journeys.
Delving into research topics ranging from sex hormones in ME/CFS/Long COVID to the intersection of chronic conditions and neurocognitive disease, Shelley's dedication to unraveling the mysteries of chronic illness knows no bounds. At Remission Biome, she brings her expertise and unwavering commitment to accelerating treatments and improving the lives of millions worldwide. When not immersed in the world of research and advocacy, Shelley finds solace in the simple joys of digging her toes in the sand, dreaming of mermaid adventures, and cuddling with her beloved puppies.
Our Remission Biome Team
Meet Tess Falor, PhD, our visionary founder based in the colorful city of Denver, Colorado. Armed with an undergraduate degree in Aerospace Engineering and a PhD in Earth and Planetary Science, Tess's journey from NASA's Jet Propulsion Laboratory to the forefront of medical research is nothing short of inspiring. Her relentless pursuit of understanding, coupled with her personal battle with chronic illness since 2005, has fueled her passion for patient advocacy and citizen science.
Fascinated by systems biology, neuroinflammation, and evolutionary medicine, Tess combines her diverse background in systems engineering and scientific research with her personal experience to drive meaningful change. Her journey from a patient seeking answers to a leader empowering millions embodies the spirit of resilience and innovation.
When not wrangling her illness or spearheading groundbreaking research at Remission Biome, Tess enjoys spending time with her young son, indulging in her love for cooking, and unleashing her creativity through mixed media art. Her dedication to improving the lives of those affected by chronic illness is reflected not only in her work but also in her unwavering commitment to making a difference in the world.
Isabel Ramirez-Burnett is at the intersection of science, advocacy, and innovation. She is the CEO of Renegade Research and the Project Director of the groundbreaking Remission Biome project. When the challenges of ME/CFS rerouted her medicine career trajectory, she trained as a Systems Engineer. Her love of science brought her to the pharmaceutical industry. She later became a board-certified health coach. She found her calling as a patient-led researcher and advocate.
Driven by her own struggles, Isabel embraces citizen science. She uses her deep understanding of systems and her love for science to unravel the complexities of chronic illness. Her journey has evolved into a mission, fueling her work to redefine research paradigms and improve patient outcomes.
Isabel's passion lies in exploring the microbiome's role in health, dissecting the neuro-cognitive implications of chronic illness, and unraveling the intricate web of immune, metabolic, and inflammatory pathways. She believes in empowering patients to be catalysts for change, to reclaim agency over their health narratives. She has an unwavering commitment to reshaping the future of healthcare. As she continues to lead the charge, she embodies the spirit of empowerment, turning adversity into opportunity, and offering hope to countless others on similar journeys.
Introducing Shelley Hayden, our dynamic Group Lead/Content Manager and Renegade Research Board Secretary hailing from the vibrant SF Bay Area, California. With a background in Textile Science from UC Davis and two decades in the international fashion industry, Shelley's journey to the forefront of patient advocacy and citizen science is as diverse as it is inspiring.
Since 1996, Shelley has navigated the complexities of ME/CFS and, more recently, Long COVID, transforming her personal challenges into a catalyst for change. Her determination to understand her conditions led her down the path of citizen science, where she discovered a passion for empowering others to take control of their health journeys.
Delving into research topics ranging from sex hormones in ME/CFS/Long COVID to the intersection of chronic conditions and neurocognitive disease, Shelley's dedication to unraveling the mysteries of chronic illness knows no bounds. At Remission Biome, she brings her expertise and unwavering commitment to accelerating treatments and improving the lives of millions worldwide. When not immersed in the world of research and advocacy, Shelley finds solace in the simple joys of digging her toes in the sand, dreaming of mermaid adventures, and cuddling with her beloved puppies.
Meet Richelle Sepulveda, our Group Lead hailing from the tranquil landscapes of the Inland Northwest in the US. With a professional background in psychology education at the local community college, Richelle's journey into citizen science and patient advocacy was sparked by personal experience. Faced with navigating her child's language delays and subsequent diagnosis, Richelle's role as a caregiver and researcher ignited a passion for empowering others in similar situations.
Since March 2020, Richelle has been confronting the challenges of chronic illness, particularly Long COVID, which led her to delve deeper into understanding her condition and advocating for herself within the healthcare system. Her personal research interests span a diverse range, from exploring the intricacies of GIP & Postprandial Tachycardia to unraveling the complex interplay between hormones and health/behavior, as well as investigating learning disorders.
Joining forces with Remission Biome, Richelle brings her wealth of personal experience and professional knowledge to the forefront. Her own journey of crafting a treatment plan based on insights from the Chronic Illness Community motivates her to bridge the gap between available resources and those in need. Beyond her work with RB, Richelle finds solace in spending quality time with her husband, cherishing moments with her beloved pets, and indulging in the world of literature. As she continues her quest for health and balance, Richelle holds onto the hope of reclaiming her passions for hiking and gardening, eagerly awaiting brighter days ahead.
Melissa Red Hoffman, MD, ND, FACS initially trained and worked as a naturopathic physician and a yoga teacher. She then attended medical school at Oregon Health and Science University in Portland, Oregon, completed a residency in general surgery at Valleywise Health Medical Center (formerly Maricopa Medical Center) in Phoenix, Arizona, a fellowship in Surgical Critical Care at University of North Carolina in Chapel Hill and a second fellowship in Hospice and Palliative Medicine through Mountain Area Health and Education Center.
She now works as an acute care surgeon (a mix of trauma, surgical critical care, and emergency general surgery) and serves as an Associate Medical Director of both Hospice and Palliative Medicine, all in Asheville, North Carolina. Red is the co-founder of the Surgical Palliative Care Society and the host of The Surgical Soul podcast, exploring the secret lives of surgeons both inside and outside the operating room.
As the survivor of multiple violent losses and as a physician with chronic illness, Red utilizes her diverse personal and professional experiences to deliver whole-person care to patients and their families, often during some of the most challenging days of their lives. She spends her free time resting, soaking in the bathtub, creating, and hanging out with her favorite person (boyfriend, Charles) and her favorite animal (orange cat, Sammy).
Introducing Nick Melia, our Lead Researcher with a dual residency in Oliva, Spain, and Wales, UK. With a background in medical biochemistry and a firsthand experience as a long COVID patient, Nick's journey into patient-centered research was catalyzed by personal and familial encounters with chronic illness. Witnessing his mother's battle with fibromyalgia and experiencing his own onset of long COVID in 2020 ignited a fervent dedication to unraveling the complexities of chronic diseases.
Since 2015, Nick has been delving into the intricate web of chronic illness, focusing his research efforts on understanding disease processes in ME/Long COVID and exploring the variability of patient responses to interventions. His personal interests span a broad spectrum, from investigating polymicrobial dysbiosis and pro-resolving responses to inflammation to delving into the phenotyping of chronic diseases. Nick's collaboration with Remission Biome stems from a belief in the power of multidisciplinary teams to challenge outdated methodologies and uncover new hypotheses, empowering patients to understand and navigate their conditions more effectively.
Beyond the realm of research, Nick finds solace in the pursuit of knowledge, immersing himself in eclectic reads ranging from ecology to philosophy, sociology, and beyond. His curiosity extends to experimenting with food and drink, a passion that led him to work in a molecular gastronomy bar prior to his illness. A connoisseur of electronic music, Nick's diverse interests fuel his drive to decipher the intricacies of scientific concepts while embracing the joys of life outside the laboratory.
Meet Kat Boniface, ABD, our Group Lead orchestrating from the realms of animal science and the history of science & technology. Kat's journey into the realm of citizen science and patient advocacy began long before her own health battles. From undergraduate days at Stony Brook, where she immersed herself in student-led experiments, to her involvement with the local Agricultural Extension while managing an equestrian program in Maryland, Kat has always been drawn to the intersection of research and community engagement. However, it was a personal health crisis in the spring of 2021 that propelled Kat into the forefront of patient-centered research. Battling years of medical uncertainty and experiencing a terrifying moment of paralysis, Kat delved headfirst into medical literature, applying her knowledge of animal science to decipher the complexities of her own condition.
Since 2008, Kat has navigated the challenges of chronic illness, weaving her experiences and expertise into a journey of discovery. Fascinated by the intricate workings of glutamate and the shared metabolic and immune processes between ME/LC and acute laminitis in horses, Kat serves as a genetics translator, bridging gaps between disciplines. Her collaboration with Remission Biome signifies a convergence of personal experimentation and collective learning, as she channels her passion for understanding mechanisms into actionable solutions for all.
Beyond her role as a patient researcher and advocate, Kat is a founder of the Equine History Collective and a devoted horse trainer. In the moments between wrangling her illness and diving into research with RB, she finds solace in the timeless connection between humans and horses, a bond that transcends the boundaries of time and space.
Introducing Elly Brosius, MS, our Volunteer Protocol Group Lead and Support Group Host, hailing from the landscapes of Northern VA and Eastern NC. With a profound journey spanning back to age 11, Elly has navigated the challenges of chronic illness, officially recognized as ME/CFS with Orthostatic Intolerance and neck instability since 1992, with the recent addition of Long COVID in 2020. Armed with a background in physics and acoustics, Elly's transition into the realms of citizen science, patient research, and advocacy was driven by a deep-seated need to find solutions, not just for herself but for the broader community grappling with similar afflictions.
From her involvement in government trials to her steadfast advocacy spanning over three decades, Elly's journey is marked by a relentless pursuit of knowledge and solutions. With a keen interest in tailoring supplementation, understanding immune system activation of coagulation, and exploring the nuances of probiotic strains, Elly's research endeavors are fueled by a desire to unravel the complexities of chronic illness and improve the quality of life for herself and others.
Collaborating with Remission Biome, Elly finds solace and empowerment within a community that values every individual, irrespective of their level of illness. As she delves into seminar organizing and Remission Biome data compliance and analysis, Elly finds joy in her medicinal gratitude group, indulges in creative sewing projects, and unwinds with cooking reality TV, finding solace and inspiration in simple pleasures amidst the complexities of chronic illness and research advocacy.
Introducing Andrew Boland, a resilient Software Engineer and Website Developer from the vibrant city of Dublin, Ireland. Andrew's journey into the realm of citizen science and patient advocacy was catalyzed by his own battle with chronic illness, specifically Long COVID, which struck him in May 2022, abruptly halting his professional pursuits. Armed with a background in theoretical physics and mechanical engineering, Andrew's transition into the role of a patient researcher was fueled by a frustrating lack of understanding and support from medical professionals, who often dismissed his debilitating symptoms as psychological or irrelevant.
Driven by a thirst for understanding and a desire to chart a new path amidst the isolating experience of chronic illness, Andrew delved deep into scientific literature, seeking to unravel the complexities of his condition. However, the sheer volume of information proved overwhelming, prompting him to seek out like-minded individuals on platforms like Twitter. It was through this journey that Andrew connected with Tess and RemissionBiome, finding solace and purpose in their shared mission to decode the mysteries of chronic illness and repurpose existing treatments for revolutionary relief.
Andrew's passion for unraveling the mysteries of chronic illness is matched only by his enthusiasm for forest baths, a practice that brings him solace amidst the chaos of his health struggles. He finds joy in learning and teaching new concepts, as well as engaging in discussions and debates about big ideas, reflecting his insatiable curiosity and commitment to making a meaningful impact in the world, both within and beyond the realm of chronic illness research advocacy.
Introducing Maya L, a dedicated Project Team Member and champion for patient-driven research, hailing from a background rich in nursing, health equity, and scientific exploration. Maya's journey into the realm of citizen science and patient advocacy was spurred by her own battle with chronic illness, which began with migraines in childhood and culminated in a debilitating bout of Long COVID in March 2020, accompanied by ME, MCAS, and exacerbated POTS, confining her to mostly bedridden life for the past three years.
With a professional history as a School Nurse and a focus on health equity as a RWJF Clinical Scholars Fellow, Maya's transition into the role of a patient researcher was driven by a lack of treatment options and institutional research interest in her condition. Recognizing the untapped potential of patients as citizen scientists, Maya believes in harnessing the collective wisdom and expertise of the chronically ill community to push scientific understanding forward. Her personal research interests, ranging from Post Exertional Malaise to Cognitive impairment and Orthostatic Intolerance, reflect her commitment to unraveling the complexities of her condition and advocating for better treatment options.
Collaborating with Remission Biome, Maya finds solace and purpose in a collective effort to self-study chronic illness. Despite her limitations, Maya is grateful for the opportunity to contribute to research as she is able. Beyond her role in patient advocacy, Maya finds joy in simple pleasures like knitting during elusive good periods, and remains passionately dedicated to health education and accessibility, even amidst the challenges of her illness.
Miguel Casali is a doctor with a humanistic approach. He is driven by curiosity, learning from different cultures, he has been driven to reject hierarchical structures that place the physician as the ultimate authority. Miguel sees his patients as human beings at the center of their stories, seeing them as human beings first.
Miguel likes to take time with his patients, both to treat and prevent further health issues. He believes in removing barriers to care, so that patients can seek the care they need anywhere. This is why his vision expands globally, where he networks with other teams providing accessible models anywhere in the world. This vision connected him to Remission Biome where he immediately became invested in helping our mission.
Miguel has successfully transitioned from a traditional health care model, where he practiced for many years in Spain, to now practicing independently in both Spain and Ireland, with plans to expand to other European countries as well as India. His vision centers around ancestral health principles and evolutionary medicine, merging the ancestral and the modern to provide his patients with the best sustainable possible treatments and strategies for the best possible outcome.
In his free time, Miguel enjoys time with Family and friends in nature hiking and fishing. He also loves the arts, including art therapy. He enjoys painting, singing, and dancing.
Ruhi Snyder is an interdisciplinary researcher, educator, and advocate. She has been in the the field of sleep medicine and health care for over two decades. She is a board registered polysomnographer and board registered in Advanced Clinical Sleep Health. Her decade long groundbreaking study “The Role of Self-Regulation to Counter the Slow Violence of Shift Work”, investigated the role of self-regulation, exercise, diet and shift schedules to mitigate the negative impact of skewed circadian rhythms.
She is the founder of ruhisleep and Naptor- not for profit organization dedicated to advocacy and public education on the science, nature, and importance of sleep - through the lens of biomedical sciences, the humanities, the economics and human rights. She is also the host and the creator of Sleep and Society Podcast, which features discussions that focus on humanity and society through the lens of sleep and wellbeing.
As a caregiver, her current focus is on the care and the treatment of humans with severe to very severe MECFS. Born in Punjab, India, she lives with her family in Kingston (Katarokwi), Ontario, Canada, situated on the traditional territories of the Haudenosaunee and the Anishinaabe Peoples of the First Nations.
Meet Merve Tepe, PhD, a dedicated member of the Social Media Team at Remission Biome, currently based in Turkey with plans to relocate to the US. With a background in microbiology and a specialization in bacterial biomineralization and industrial applications, Merve's journey into the realm of patient advocacy was sparked by an eye-opening encounter with Remission Biome. Although Merve doesn't personally suffer from chronic illness, their experience volunteering for aid societies exposed them to the struggles of individuals with ME/CFS and Long COVID, igniting a passion for patient advocacy and community-driven science.
Driven by a desire to make a difference, Merve's research interests now center around advanced gut and microbiome research related to ME/CFS, Long COVID, and Lyme disease. With a focus on understanding the role of biofilms and uncovering the root causes of these complex illnesses, Merve is committed to shedding light on the challenges faced by patients and driving forward innovative solutions. As a member of the team at Remission Biome, Merve channels their expertise into fundraising, science communication, and ensuring video accessibility, all in service of amplifying patient voices and accelerating progress in the field.
When Merve isn't immersed in the world of patient advocacy or delving into scientific research, you'll likely find them indulging in their passions outside of work. From cooking and baking culinary delights to spending time in nature, traveling, and volunteering for aid societies, Merve finds joy and fulfillment in making a positive impact both in and out of the laboratory. With unwavering dedication and a heart full of compassion, Merve stands as a beacon of hope for patients everywhere, proving that even those without personal illness can be powerful allies in the fight for a brighter, healthier future.
Meet Sam Nolen, PhD, the data maestro of Remission Biome, hailing from the vibrant cityscape of San Francisco, CA. With a Stanford math PhD tucked under their belt and a resume boasting stints at Airbnb and Google, Sam's journey into the realm of data science is nothing short of extraordinary.
But what sets Sam apart isn't just their knack for numbers—it's their resilience in the face of adversity. Since 2022, Sam has been battling chronic illness, turning the tables on their own health journey. When conventional medicine fell short, Sam took matters into their own hands, diving headfirst into the world of patient-led research. It's this journey of necessity that led Sam to the doorstep of Remission Biome, where they now lend their expertise to decode the mysteries of ME/CFS.
With a mind as sharp as their favorite chess moves, Sam's research interests revolve around unraveling the intricate subtypes within ME/CFS. Their pursuit of understanding the nuances of this complex condition is driven by a passion for progress and a determination to make a difference. When Sam isn't crunching numbers or delving into the depths of ME/CFS research, you'll likely find them locked in a strategic battle on the chessboard or buried nose-deep in ancient history texts. And let's not forget their feline companion, Lentil, who keeps things lively with playful antics and purr-fect companionship.
Meet Tara Foti, a beacon of hope and a force for change within the corridors of Remission Biome, nestled in the vibrant city of Tampa, FL, USA. Armed with a background in public health research, Tara's journey into the realms of citizen science and patient advocacy was catalyzed by a profound need for transformation. Since December 2021, Tara has confronted chronic illness head-on, fueling their passion to challenge the entrenched norms of health research and patient care.
With a keen focus on amplifying patient voices, Tara's role as a research volunteer at Remission Biome is imbued with purpose and dedication. From crafting insightful survey designs to unraveling the narratives of patient stories, Tara's expertise in healthcare services and patient perspectives serves as a cornerstone of their work. Driven by an unwavering commitment to understanding the complexities of ME/CFS and Long COVID, Tara's efforts transcend the boundaries of traditional research methodologies.
Driven by a fervent belief in the transformative power of patient-led research, Tara champions a new paradigm for post-infectious conditions. Their research interests, spanning healthcare access and quality, evidence-based practices, and innovative solutions to systemic challenges, underscore their unwavering dedication to driving meaningful change. Beyond the realm of research, Tara finds solace and inspiration in the simple pleasures of life, cherishing moments of joy with loved ones and nurturing their passions for baking, exploration, and self-discovery. As they stand shoulder to shoulder with the community at Remission Biome, Tara's presence serves as a beacon of hope, guiding the way towards a future where patients' voices are heard, valued, and empowered.
Meet Jess Wallach, a passionate advocate for change and a vital member of the Renegade Research Structure Team at Remission Biome, situated in the vibrant city of Seattle, WA, USA, on the ancestral lands of the Duwamish and Coast Salish peoples. From educator to community organizer, Jess's journey into the realm of citizen science and patient advocacy was ignited by a profound shift in their health in 2022. Faced with debilitating symptoms and a lack of answers from traditional medicine, Jess embarked on a journey of self-discovery and empowerment, fueled by a thirst for knowledge and a desire to help others facing similar struggles.
With a background rooted in grassroots activism and community campaigns for climate justice, Jess brings a unique perspective to their role at Remission Biome. As part of the Renegade Research Structure Team, Jess is dedicated to redefining traditional research structures and championing patient-led, patient-centered approaches to understanding chronic illness. Their commitment to empowering individuals through knowledge sharing and community support is a driving force behind their work with Remission Biome.
When Jess isn't wrangling their illness or delving into research with Remission Biome, you'll likely find them immersed in the joys of everyday life. From tending to their garden, where food and plant medicine play a central role, to devouring the pages of their latest read, Jess finds solace and inspiration in the simple pleasures of existence. And on a good day, you might even catch them cruising around the neighborhood on their new e-bike, soaking in the beauty of the world around them. As they continue their journey of healing and discovery, Jess stands as a beacon of hope and resilience, proving that even in the face of adversity, there is strength in community and power in knowledge.
Meet Joshua Chanin, an invaluable member of the data analysis team at Remission Biome, calling the sunny shores of San Diego, California home. With a professional background as an Associate Professor of Public Affairs at San Diego State, Joshua's journey into the realm of citizen science and patient advocacy was sparked by a personal battle with chronic illness. Since his second COVID infection in June 2022, Joshua has been on a quest to heal his body and uncover the mysteries of Long COVID.
Driven by a desire for answers and a lack of support from traditional healthcare avenues, Joshua found solace and solidarity within the community at Remission Biome. Fueled by a DIY ethos and a shared sense of empowerment, Joshua's involvement with the team represents not just a path to personal improvement, but a beacon of hope for countless others navigating similar journeys. From unraveling the complexities of information, risk perception, and health decision-making to examining the operation of publicly funded research models, Joshua's research interests underscore his commitment to driving meaningful change.
When Joshua isn't wrangling his illness or diving into data analysis with Remission Biome, you'll likely find him indulging in the simple pleasures of life. Whether he's spinning Modest Mouse records, cheering on the San Diego Wave, or sharing laughs with his kids over his (hilarious) jokes, Joshua finds joy and inspiration in the moments that matter most. As he continues his quest for healing and understanding, Joshua stands as a testament to the resilience of the human spirit and the transformative power of community-driven research.
Meet Kimberly Kerr, a dedicated advocate for change and virtual collaboration expert based in Canada. With a diverse background in business, marketing, psychology, and women's studies, Kimberly's journey into the world of patient advocacy was spurred by her own battle with chronic illness. Struggling with chronic kidney disease (CKD), immunoglobulin deficiency (IgG), and Long COVID, Kimberly's journey of self-discovery and empowerment began in earnest in early 2023 when she was diagnosed with end-stage kidney disease (ESKD).
Armed with a passion for self-directed healthcare and a thirst for knowledge, Kimberly became a staunch advocate for herself and others facing similar challenges. Frustrated by the lack of information and resources within the traditional healthcare system, Kimberly turned to alternative health options and the wisdom of fellow chronic illness warriors for guidance. Now, as a member of the Team at Remission Biome, Kimberly lends her expertise to social media management, public relations, fundraising, and sponsor coordination, all while championing the mission to empower the chronically ill with knowledge and support.
When she's not busy supporting Remission Biome, Kimberly finds solace and joy in the company of her granddaughter, grandpuppies, and three adult children. In her spare time, she enjoys immersing herself in literature, music, and online chess, grateful for the technology that allows her to connect with the world despite the physical limitations imposed by her chronic illnesses. With unwavering determination and a heart full of compassion, Kimberly stands as a beacon of hope for individuals navigating the complex landscape of chronic illness, proving that even in the face of adversity, there is strength in community and power in knowledge.
Meet Sam Keating, a true embodiment of resilience and determination, wearing multiple hats as a Citizen Scientist, Systems Biologist, and Patient-turned-Researcher. Based in Silver Spring, Maryland, USA, Sam's journey into the world of patient advocacy and research was shaped by a lifetime of battling chronic illness. From a sudden onset of POTS in 2016 to navigating multiple comorbidities, including epileptic dysgenesis that led to a right temporal lobectomy surgery at age 17, Sam's journey has been marked by challenges and triumphs alike. But rather than letting adversity define them, Sam has embraced a philosophy of seizing control over their own destiny, channeling their experiences into a relentless pursuit of knowledge and innovation.
With a professional background spanning Chemical Engineering, Bioinformatics, and Systems and Synthetic Biology, Sam's expertise shines through in their role as a Data Analysis contributor and planning member at Remission Biome. Drawing inspiration from their own lived experiences and fueled by an unwavering ambition to develop new treatment options, Sam is at the forefront of ME/CFS and Long Covid bioinformatics research, employing cutting-edge techniques like single cell RNA sequencing (scRNAseq) and scSLAMseq to unravel the mysteries of these complex conditions.
With each step forward, Sam is not just shaping the future of research but inspiring others to redefine what's possible in the face of adversity. Motivated by their most ambitious career goal, Sam is determined to develop new treatment options for at least one condition they have firsthand experience living with.
Meet Patricia, a dedicated accounting professional with a heart for advocacy and a commitment to improving the lives of those battling chronic illness. Based in Connecticut, US, Patricia's journey into the world of patient advocacy was shaped by her own battles with ME/CFS since 2009 and Long COVID since 2023. With a background as a CPA and experience in both Big 4 Accounting firms and private accounting, Patricia brings a wealth of expertise to her role at Remission Biome, where she focuses on budgeting and accounting systems.
Driven by a desire for improved quality of life and a lack of medical options for ME/CFS patients, Patricia's journey into patient advocacy is rooted in a quest for solutions and support. With a keen interest in researching potential structural issues due to collagen breakdown, viral persistence in organs, and inflammatory responses, Patricia is determined to uncover new insights and potential treatments. Her decision to work with Remission Biome stems from the community's well-informed, compassionate nature and their dedication to sharing knowledge and resources.
When Patricia isn't wrangling numbers or delving into research with Remission Biome, you'll likely find her soaking up the sun at the beach, cherishing moments with her family and beloved dog, or indulging in her passion for cooking. With a heart full of compassion and a mind dedicated to making a difference, Patricia stands as a beacon of hope for patients everywhere, proving that even in the face of adversity, there is strength in community and power in knowledge.
Michael has a background in zoology and psychology, with a special interest in nature connectedness. They are an active member of the Long Covid community and involved in various projects, such as Long Covid Support, Renegade Research, Remission Biome, CrunchME, Long Covid Toolkit, and he is one of the LC-PLAN advocacy graduates. They are also involved in PPIE (Patient and Public Involvement and Engagement) for Long Covid research studies, e.g., LOCOME (via Action For ME). When they recover, you’ll find them underwater.
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